The Farr Institute’s work in Ethics and Governance addresses the legislative and regulatory frameworks around the use of ‘big data’ for research (primarily Information Governance, Research Governance and Research Ethics) and measures to ensure compliance in these areas.
Robust, proportionate Governance solutions are essential to ensure that the privacy, rights and confidence of patients and the public are respected in responsible conduct for big data custodianship and research.
The Institute’s Innovative Governance Working Group aims to research and share best practice for the trustworthy reuse of health-related data and to promote solutions that meet the relevant Governance requirements, without being unduly burdensome to research.
Recent publication: The other side of the coin: Harm due to the non-use of health-related data, International Journal of Medical Informatics, September 2016.
The group is actively involved in research, development and dissemination by: